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Nystagmus Awareness Day 20th June

In order to achieve one of its charitable objectives, to raise awareness of nystagmus and thereby make life for those living with the condition just that little bit easier, the Nystagmus Network hosts an annual national and international Nystagmus Awareness Day on 20 JUNE.

parkrun for Nystagmus Awareness Day 2019

This year we’re joining forces with parkrun UK to offer you the opportunity to get out into your local park and walk or run for nystagmus awareness.

You can take part in parkrun just about anywhere in the country, every week of the year. But what better way to raise awareness of nystagmus than to do your parkrun during “wobbly week”?

On Saturday 22 June you can take part in a full parkrun. That’s 5k CLICK HERE to find your parkrun

On Sunday 23 June children 4-14 years and their families can take part in junior parkrun. That’s 2kCLICK HERE to find your junior parkrun

parkrun is fully accessible to people with vision impairment. There are over 70 fully trained volunteer VI guides available, but all runs are VI friendly with or without guides.

Download your parkrun sponsorship form here.

If you prefer, you can organise your own event on Nystagmus Awareness Day itself, Thursday 20 June, or during ‘Wobbly Week’ which runs from 17 to 23 June, including good old “wobbly Wednesday” on 19 June.

Get your Nystagmus Awareness Day inspiration here.

How amazing are you?

In the run up to Nystagmus Awareness Day 2019, we’ll once again be asking you to share your amazing nystagmus success stories. Please send your amazing stories and pictures to

FREE resources

We have free to download posters, PowerPoint presentations, lesson plans, bunting and loads more!

FIND EVERYTHING YOU NEED in our online shop today.

Why do we need Nystagmus Awareness Day?

Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.

Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you invite someone to a Nystagmus Awareness Day event or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.

Every pound you raise helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.

Let’s make Nystagmus Awareness Day 2019 the biggest and best ever!